Day +65

Posted on: 02/06/2014

A quiet Sunday here, all of the shops were shut and it seems like everyone has gone away for the bank holiday weekend. Ava wasn't complaining, as it meant she had the local playground all to herself. It was nice for her not to have to wear her infection mask, as she usually does so when near other children. She hates the smell of it and I have to put geranium oil on it before she will put it on. More good news from Derbyshire tonight, the fundraising girls have reached a grand total of £1000! This is a really impressive amount that will not only boost the research, but also go towards helping make life more comfortable for those who are affected by MLD but sadly don't qualify for the treatment which Ava has undergone. Massive thanks to everyone who donated or bought something.