2 years + 1 day! - Image 1

2 years + 1 day!

Posted on: 29/03/2016

Yesterday we celebrated the 2 year anniversary of Ava receiving her new DNA. It is an incredible privilege to be able to say that. Despite our daily fears, worries and challenges, the thought of Ava being 2 years further into MLD without Gene Therapy puts everything into perspective. We will be forever grateful for the opportunity of this pioneering treatment and for the precious time we have had with Ava since then, when she could have lost so much more ability. I spent most of the day yesterday remembering the incredible support we received from the hospital team, not to mention the love and kindness which poured in from family and friends, strangers and acquaintances alike. Yesterday was a super day, made even more special by the fact that one of Ava's friends from nursery was in town from Chicago with her lovely family. That and an ice-cream cake from our favourite gelateria in London, OlivoGelo. Happy Re-Birthday darling girl! Xx



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