Rare Disease Day 2019

Posted on: 28/02/2019

What better way to celebrate Rare Disease Day than great test results from Milan? All good, with small but important improvements in ear and eye nerves. I also attended the annual Genetic Alliance Rare Disease Day reception at the Houses of Parliament, where it was fantastic to meet yet more inspirational people in the rare disease community and those working tirelessly to improve things for all of us.