Happy 2020Posted on: 03/01/2020
A very Happy New Year from our family to yours. We're starting 2020 with some great news - after significant resistance, the NHS have finally agreed to fund out of term time therapy for Ava. We are hopeful that this much-needed continuity will give Ava a physical boost and go some way towards preventing further issues with her right hip, which is beginning to dislocate. It has been a lengthy battle to secure Ava the support she needs and sadly something which will be ongoing, due to the rareness of her situation and the lack of clinical knowledge around it in the UK. We are thankful for this very positive step in the right direction.