Happy 13th Birthday AvaPosted on: 24/11/2019
Our shining star is now also a teenager! We had a lovely celebration for Ava's birthday, including a family dinner with a fantastic singer who performed all of Ava's favourite Disney songs. We also had a brilliant fireworks display and floating lanterns. 13 is a big birthday for many, but its even more poignant for us. When Ava was diagnosed we were told she wouldn't make it to teen-age. It is thanks to gene therapy that Ava has defied that. Happy birthday Ava and many more to follow.