Rare Disease Day 2020Posted on: 15/04/2020
Today is Rare Disease Day and our Newborn Screening campaign has gotten off to a fantastic start. Yesterday it was given very prominent coverage in the Daily Mail. The article above takes the whole of page 4, which is truly excellent given how many other health stories are vying for position. The coverage is also echoed in Daily Mail Online and has already been shared over 300 times. Thanks to the Elson family, whose heart-breaking experience of MLD has helped bring this new story to many people's attention and hearts. In additon to this press coverage, Ava and I were featured in a report about our campaign on ITV News at 6pm and 10pm last night! Thanks to Nickie Aiken MP and her team for securing such invaluable interest from key health editors, we are hoping for further press coverage next week.