CALLING ALL UK MLD FAMILIES - Image 1

CALLING ALL UK MLD FAMILIES

Posted on: 29/08/2020

ArchAngel has joined forces with MLD Support UK and The MPS Society to support of the approval of Gene Therapy for MLD for use by NHS England. As part of the formal assessment process conducted by the National Institute for Health & Care Excellence 'NICE', we need to demonstrate the devastating effects of this disease on patients and their families. The survey below will give us vital evidence. It will also massively help the case for Newborn Screening for MLD. Timely diagnosis would mean that more children would have access to this potentially life-saving treatment in the future. We urge all affected UK families to complete the attached survey and indicate whether you would be willing to also take part in a follow-up interview. Thank you in advance for your support. The link will be live until 11th September 2020. MLD Caregiver Survey



©2020 Copyright ArchAngel MLD Trust
Website by Modern Websites