Rare Disease Day 2021

Posted on: 28/02/2021

Today is Rare Disease Day when we are thinking of all of the courageous and inspirational families who are living with rare diseases like MLD. At times it's hard to believe the surreal year which has passed since last year's RDD, when we launched the ArchAngel Newborn Screening Review Campaign in conjunction with Nickie Aiken MP.  Whilst Covid has understandably knocked us off the health and press agendas, we have nevertheless continued to work on the campaign behind the scenes and look forward to the time, in the hopefully not too distant future, when we can pick this up again with policy makers.