Day +139

Posted on: 14/08/2014

The last 10 days have been busy, as usual! We took Gigliola to Kensington Palace, where Ava was mesmerised by the Queen's dress collection - and this fantastic paper Georgian dress. We then had several lovely days in the country, visiting Ava's grandparents, aunt, uncle and cousins. This was a very active time with lots of fresh air and outdoor exercise. Ava is not as strong or as fast as the other girls, but she is no less determined and managed to hold her own (with the exception of tree climbing!) which was very pleasing for her. We also visited the annual country show in Bakewell, Derbyshire, which Ava has been looking forward to since Milan. She was delighted to see a 'Frozen' themed pony display, with 'Anna' and 'Elsa' riding out resplendent in their ball gowns. I had a chance to catch up on writing some of the ArchAngel thank yous, which are somewhat belated, but no less sincere. We are extremely grateful to everyone who has donated so far and I am thrilled to say that donations are still coming in. Even though the future is looking very optimistic for Ava, her treatment is still being trialled and lots of children are still facing a horrific daily battle with MLD. It's fantastic to think that in sharing our experience people are moved to help the boost funds for more research. EVERY donation is valued and the reason why such medical breakthroughs are made possible.