Day +15

Posted on: 12/04/2014

I am happy to write that Ava has had a better day today and she is certainly in less pain. Her mouth and throat have been so sore that she has barely spoken for a couple of days, but today she has been able to chat a little. It felt like such a blessing to hear her voice, a poignant reminder that without this treatment, MLD would unquestionably claim her ability to speak. Ava perked up massively when Daddy arrived and I have left them excitedly preparing a movie night together as I head off for a night out of the hospital and the promise of an unbroken nights sleep.