Day +83

Posted on: 19/06/2014

After a nice walk and visit to the playground this morning, we heard that tomorrow's hospital appointment was being brought forward to this afternoon. Ava met Dr Sabrina for her neuropsychological assessment, which is one of the routine tests she regularly undergoes to monitor any changes in her cognitive function. As Gene Therapy won't arrest her condition for around six months after transplant, there is still potential for deterioration. We should hear feedback on Monday. We also saw Dr Biffi today, who confirmed that we can fly home on Monday 30th June! Ava and I both love being in Milan and it's great to think that we will return here on a regular basis, starting with 6 months post-transplant checks in September. For now though, we are certainly ready to have our family back together again. 11 DAYS AND COUNTING!!