Milan here we come!

Posted on: 20/03/2016

Today Ava and I flew back to Milan for her 2 year post-transplant assessment. Although people keep telling me they can't believe that two whole years have passed already, for me it often feels like longer, as Ava has changed so much since Gene Therapy, for better and for worse. She can no longer walk independently and some days it seems that her motor skills are undergoing even further decline. Yet her cognitive ability definitely appears to be ascending. Not only is she chatting more and making insightful comments, but a recent assessment by an independent educational psychologist showed that in the last 12 months Ava's verbal comprehension has leapt forward by 2 years. Let's hope we receive more positive results this week in Milan.